CarerHelp National Reference Group - CarerHelp

CarerHelp National Reference Group

The National Reference Group supports and advises the project team. It includes representatives from groups that support people from diverse communities and people with advanced diseases and their carers. The National Reference Group provides invaluable feedback. We gratefully acknowledge the contributions they have made. The NRG member organisations include:

  • A/Prof Mark Boughey
    Deputy Director, Centre for Palliative Care & Director of Palliative Medicine , St Vincent's Hospital
    [Palliative care clinician representative with CALD (aboriginal) and/ or regional/ rural experience]
  • Prof Peter Hudson
    Director, Centre for Palliative Care
  • Dr Kristina Thomas
    Research Fellow
  • Di Saward
    Research Nurse
  • Alfreda Soetopo
    Administration Officer

Peter Hudson talks about how CarerHelp can assist Carers in three keyways with Practical information and resources, prepare for the future and provide directions to assist directions.

Tina Thomas discusses the development of CarerHelp and the importance of carers being involved in process.

  • Prof Jennifer Tieman
    Director, CareSearch, Flinders University
  • Mr Chris Hall
    CEO, Australian Centre for Grief and Bereavement
  • Professor Neil Drew
  • Dr Susan Hanson
    Senior Manager, Cancer Australia
  • Liz Callaghan
    CEO, Carers Australia
  • Dr Christine Walker
    CEO, Chronic Illness Alliance
  • Mr Benjamin Gorrie
    President of the Board, CATSINaM

Benjamin Gorrie talks about how CarerHelp improves the health literacy of carers.

  • Ms Elena Sutcliffe
    Consumer Engagement Coordinator, Dementia Australia
  • Daniel Coase
    Senior Policy Advisor

Daniel Coase explains how CarerHelp can assist those of culturally and linguistic diverse backgrounds.

  • Ms Regina Kendall
    Nurse Practitioner, Grampians Regional Palliative Care Team
  • Jennifer Brittain
    Partner Manager
  • Hannah Morgan
    National Palliative Care Project Coordinator
  • Mr Mark Brooke
    CEO, Lung Foundation Australia
  • Ms Carol Birks
    CEO, MND Australia

Carol Birks talks about CarerHelp provides the information in a variety of different platforms and useful for people living with Motor Neurone Disease.

  • Ms Deidre Mackechnie
    CEO, Neurological Alliance Australia (NAA) & Multiple Sclerosis Australia
  • Louise Keightley
    Senior Projects Officer
  • Ms Jodette Kotz
    CEO, Parkinson’s Australia
  • Ms Siobhan McGinniss
    StrokeConnect Officer, Stroke Foundation
  • Prof Deborah Parker
    Professor of Aged Care (Dementia), Faculty of Health, University of Technology Sydney (UTS)

Deb Parker talks about the resources of CarerHelp and how they may assist the carer and how we plan to further develop the toolkit.

  • Prof Geoffrey Mitchell Professor of General Practice, Primary Care Clinical Unit, Faculty of Medicine, University of Queensland
  • Susan Thompson
    Advocacy advisor

Palliative Care Section, Primary Health and Palliative Care Branch, Primary Care Division, Australian Government Department of Health

  • Nicole Fitzgerald
  • Wendy Geoghegan
    Policy Officer