Why end of life caring matters
Caring for someone at the end of their life is a very important role. People who do this help the person they care for and that person’s family and friends. They also help the community by reducing the pressure on our health care system. Carers are vital members of the Australian community and we are so thankful for what they do.
Caring for someone who is dying can be very difficult. Often, people are caring for someone who is very close to them. This makes the end of life very emotional, which can be hard to cope with. Relationships can change significantly, and the caring role can become much more intense at this end of the caring journey.
Although this can be a tough time for everyone involved, there are options available to make things a little easier. This can also be a time to make new memories or to say and do important things. Even in hard times, there can be moments of joy. Relationship may change, but this can also mean that they get stronger or more intimate. The information provided in the service is intended to encourage, not replace, direct patient-health professional relationships.
How CarerHelp is funded
CarerHelp has been built by the Australian Family Carer Toolkit Project. This project is funded by the Australian Government Department of Health. It is one of a range of national palliative care projects that receive funding from the government.
What we hope CarerHelp will do
We hope that CarerHelp will empower carers to cope with the hard times as well as they can, and to make space for good times as well. When carers feel ready for their role, everybody benefits. Here are some of the key things we want carers to get out of the website:
- Access to high quality information and resources that support them in the carer role
- Knowledge of the services available to carers
- An understanding of what to expect when someone is dying
- A greater sense of control over their role
- Better communication with the health care team, family and friends
- Greater wellbeing
The project teams
There are several teams involved in CarerHelp. The main teams come from:
- The Centre for Palliative Care, which is a department of St Vincent’s Hospital Melbourne and a Collaborative Centre of The University of Melbourne
- CareSearch, which is a palliative care website based at Flinders University
- The University of Technology Sydney
- Carers Australia
You can find out more about the people involved by going to the Project Team page.
We also have a National Reference Group. The members of this group represent a range of groups in Australia that support people with advanced diseases and their carers. There is more information about our National Reference Group on our National Reference Group page.
Members of the project team do not have any financial or structural conflicts of interest.
To maintain currency, the Project Team reviews content at the start of each calendar year.
Carers played a critical role in the development of CarerHelp. Eighteen carers either attended a focus group in Sydney or participated in a semi-structured interview over the telephone. Over 20 carers provided feedback on the CarerHelp website before release to improve it.
We are committed to making CarerHelp a useful resource for carers. One of the ways we can do this is by evaluating the website to check whether carers are finding it helpful. So, we will be asking carers to provide us with feedback to help us make the website better.
You can learn more about the evaluation process by visiting the Evaluation page. Please feel free to send us any comments or suggestions you have for the website by email: firstname.lastname@example.org