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National Reference Group - CarerHelp

National Reference Group

The National Reference Group for the project behind CarerHelp is comprised of representatives of a range of groups in Australia that support people with advanced diseases and their carers. They have provided us with invaluable feedback during all the stages involved in developing CarerHelp. We gratefully acknowledge the contributions they have made. The following membership list was current in September, 2019.

Project Lead

Centre for Palliative Care (St Vincent’s Hospital & Collaborative Centre of The University of Melbourne)

  • Prof Peter Hudson
    Director, Centre for Palliative Care
  • Dr Kristina Thomas
    Research Fellow, Centre for Palliative Care
  • Ms Alfreda Plazzer
    Project Manager - Research, Centre for Palliative Care

Project Partners

CareSearch (Flinders University)

  • Prof Jennifer Tieman
    Director, CareSearch, Flinders University

University of Technology Sydney (UTS)

  • Prof Deborah Parker
    Professor of Aged Care (Dementia), Faculty of Health, University of Technology Sydney (UTS)

Carers Australia

  • Ms Sue Elderton
    National Policy Manager, Carers Australia

National Reference Group

Centre for Palliative Care & St Vincent’s Hospital Melbourne

  • A/Prof Mark Boughey
    Co-Deputy Director, Centre for Palliative Care & Director of Palliative Medicine, St Vincent’s Hospital Melbourne

Grampians Regional Palliative Care Team

  • Ms Regina Kendall
    Nurse Practitioner, Grampians Regional Palliative Care Team

Australian Centre for Grief and Bereavement

  • Mr Chris Hall
    CEO, Australian Centre for Grief and Bereavement

The Federation of Ethnic Communities’ Councils of Australia Inc (FECCA)

  • Mr Daniel Coase
    Policy & Projects, The Federation of Ethnic Communities’ Councils of Australia Inc (FECCA)

Palliative Care Australia

  • Ms Kelly Gourlay
    National Policy Advisor, Policy and Programs, Palliative Care Australia

Chronic Illness Alliance

  • Dr Christine Walker
    CEO, Chronic Illness Alliance

Cancer Australia

  • Ms Susan Hanson
    Senior Manager, Cancer Australia

Lung Foundation Australia

  • Mr Mark Brooke
    CEO, Lung Foundation Australia

Neurological Alliance Australia (NAA) & Multiple Sclerosis Australia

  • Ms Deidre Mackechnie
    CEO, Neurological Alliance Australia (NAA) & Multiple Sclerosis Australia

MND Australia

  • Ms Carol Birks
    CEO, MND Australia

Dementia Australia

  • Ms Elena Sutcliffe
    Consumer Engagement Coordinator, Dementia Australia

Parkinson’s Australia

  • Ms Jodette Kotz
    CEO, Parkinson’s Australia

The Stroke Foundation

  • Ms Siobhan McGinniss
    StrokeConnect Officer, Stroke Foundation

Primary Care Clinical Unit, Faculty of Medicine, University of Queensland

  • Prof Geoffrey Mitchell
    Professor of General Practice, Primary Care Clinical Unit, Faculty of Medicine, University of Queensland

National LGBTI Health Alliance

  • Ms Samantha Edmonds
    Manager – Ageing and Aged Care Project, Silver Rainbow, National LGBTI Health Alliance

Healthdirect Australia

  • Mr Andrew Bryant
    General Manager for Consumer Health Services, Healthdirect Australia

Congress of Aboriginal and Torres Strait Islander Nurses and Midwives (CATSINaM)

  • Mr Benjamin Gorrie
    President of the Board, CATSINaM