Privacy and Terms and Conditions

Privacy and Terms and Conditions

Please take the opportunity to read this important notice

About our content

Although we have attempted to ensure the information published on the CarerHelp website (including all articles, research data, surveys, forums/chat rooms and commentary; hereafter 'Information') is as accurate and complete as possible, such Information may change from time to time. This may be because further research is developed and becomes available. Practice may also vary according to what is available locally (e.g., specific medications) and the experience and expertise of local health professionals. In addition, the information is necessarily of a general nature, and health professionals should use their best clinical judgement in the way in which it is used. Individuals should seek professional medical care and advice as required.

The information provided in the service is intended to encourage, not replace, direct patient-health professional relationships.

To the maximum extent permitted by law, we make no warranties, expressed or implied, regarding errors or omissions in the Information. We assume no liability or responsibility for loss or damage resulting from the use of Information. All access to and use of the Information is at the risk of the user.

On the CarerHelp website, we may provide links to other websites. The inclusion of these links does not mean that they or their information, products or services are endorsed or recommended by us. We do not exercise any control over the content on these websites, and you are subject to that website's privacy policy when you leave our website. We do not endorse, and will not be liable for, the content or use of adapted products that are incorporated on other websites. We are not responsible for the use of a link where a commercial charge applies. Individual users are responsible for any charges that their use may incur.

Funding and advertising

CarerHelp is funded by the Australian Government Department of Health. The funding is to provide resources, tools and information for carers looking after someone with a life limiting illness.  The funder does not influence editorial policies or quality processes. 

We are not influenced by sponsorship, and express advertising or implied endorsement for any commercial products or services is strictly prohibited. Reference on our website to any specific commercial product, process, service, manufacturer, company or trademark does not constitute its endorsement or recommendation by us.

When visiting the CarerHelp website, you may find pop-up advertisements. These advertisements were most likely produced by other websites you visited or by third-party software installed on your computer. We do not endorse or recommend products or services for which you may see a pop-up advertisement on your computer screen while visiting our website. All material contained within the advertised website, and on any pages to which it is linked, is completely independent of us and in no way represents our interests or policies.

Website privacy statement

Your privacy is important to us. The following information describes our privacy policy and how we collect, hold, use and protect Personal Information.

CarerHelp is a collaborative project funded by the Australian Government Department of Health and delivered by St Vincent’s Hospital Melbourne, Flinders University, University of Technology Sydney and Cares Australia.

Flinders University’s Privacy Policy (the Policy, pdf 160kb) applies to Flinders University’s performance of the  CarerHelp project activities. Flinders University is responsible for maintaining the CarerHelp website.

Please note that the CarerHelp Website uses cookies to maintain session information between web pages. 

Google Analytics is used to analyse traffic to this website. Google Analytics does not maintain individual profiles for visitors, nor does Google Analytics collect data that might identify you. Google Analytics only collects aggregate data. More information about the Google Analytics privacy policy.

If you do not agree with any part of this Policy we recommend that you do not provide your Personal Information to us. However, please note that in some systems collecting of data is automatic. For example, telephone systems. If you do not agree with this, do not proceed to use the CarerHelp website.


CarerHelp uses  “cookies” in order to better serve our website users. These cookies contain specific information (not identifiable) about you and track your visits to our site.
When using our website, you accept the use of cookies. Otherwise, please do not use our service.

What is a cookie?

A “cookie” is a small text file that is sent to your browser and stored on your computer’s hard drive when you visit our site. Each time you use the same computer to access our site, our Web servers will be notified of your visit and in turn we may have knowledge of your visit and the pattern of your usage.

What sort of cookies does our site use?

Some cookies are necessary for the operation of our site. For example, when you choose a language, a cookie will help us recognize you as an existing user and will show you the right information. If you choose to block cookies, some aspects of the site may not work for you.

How do I disable cookies?

Most browsers allow you to refuse to accept cookies. You can also delete cookies already stored on your computer.

All cookies have a default expiration date, but you can manage this date yourself and empty the storage.

Different Web browsers may use different methods to manage cookies. Please follow the links below to access the browser manufacturers directly in order to configure your browser settings.

Blocking cookies will have a negative impact on the usability of some websites, but this will not affect your use of our site.

Personal Information

Personal Information means information or an opinion about an identified individual, or an individual who is reasonably identifiable, whether the information or opinion is true or not and whether the information or opinion is recorded in a material form or not. By using the CarerHelp website, other services provided by us and/or by contacting us, we may collect and hold Personal Information about you which may include information about your identity (name, date of birth, nationality, qualifications, employment), your contact details (address, telephone number, email, fax number), your image and voice (photograph of you, video of you and/or audio of your voice) and other information described in the Policy.

The Policy

Under the Policy we comply with the Australian Privacy Principles as set out in the Privacy Act 1988 (Cth) and with Regulation EU (2016/679) General Data Protection Regulation.
The Policy details:

  • the kinds of Personal Information we may collect;
  • the ways we may directly and indirectly collect Personal Information;
  • the ways we hold, store and secure Personal Information; and
  • the purposes for which we collect hold, use and disclose Personal Information.

Our use of Personal Information may extend beyond the uses outlined in the Policy, but will be restricted to purposes that we consider to be related to our functions and activities. We may also be required to disclose Personal Information for any other reason not stated in the Policy, when required by operation of law.

European Union

If you are an individual located in the European Union the additional privacy provisions set out in the Policy will apply to you.

Accessing or correcting Personal Information

You may request access to and seek correction of the Personal Information we hold by contacting the CareSearch Chief Investigator by phone: 08 7221 8237, post: GPO Box 2100 Adelaide SA 5001 Austraia, or email: carerhelp@flinders.edu.au.

Questions or complaints

You can raise questions or complaints about how we have handled your Personal Information by contacting Flinders University in the manner set out in the Policy. Flinders University will acknowledge receipt of your complaint in writing, within five business days, and investigate and respond to you within 30 business days.


The Information published on the CarerHelp website is subject to the intellectual property rights arising under law and statute, including the Copyright Act 1968, held by St Vincent’s Hospital Melbourne, Flinders University, University of Technology Sydney and/or Carers Australia. Permission is given for users to view, print and use the Information via the Internet and in electronic form, provided that it is for personal, domestic or genuine research purposes only and for purposes associated with the use of the CarerHelp website (for example, a discussion forum). Information published on the CarerHelp website is not to be usedfor commercial purposes.

No Information published on the CarerHelp website may be copied, modified or reproduced in any way without the written permission of St Vincent’s Hospital Melbourne, Flinders University, University of Technology Sydney and/or Carers Australia.

The CarerHelp website also publishes Information authored by other parties. Every effort to contact those authors or others who may have intellectual property rights, including copyright, in material in the literature database published on the CarerHelp website has been made. Please contact us if you believe that any copyright material has been used on the CarerHelp website without the permission of the author.

Training materials

Our online learning materials can be of value to carers, aged care staff and health professionals but such materials are not intended to replace formal education and training. Use of online training materials should not be considered as a qualification in palliative care. No formal accreditation is offered via our website.

We use reasonable endeavours to review the source of the materials and to assess the credibility and qualifications of the author or organisation involved.


This website is authorised by Professor Jennifer Tieman, Flinders University. Editorial control is exercised by the CarerHelp Project Team, details of which can be found in the About Project Team page.

Please email any questions or concerns to the website administrator at: carerhelp@flinders.edu.au.